Title: Ocular Coherence Tomography (OCT) study.
Date PPI Involvement: February 2019
Condition Addressing: Age Related Macular Degeneration (AMD)
Number of People contributing: 6 research community members contributed.
Main aim of the activity: To review the patient information sheet for the Ocular Coherence Tomography (OCT) study.
Purpose and Outcome: Patients with known wet AMD were contacted to review the patient information sheet for the OCT study. They gave feedback on language, understanding, abbreviations, jargon and made recommendation on anything they felt would be helpful. Feedback was passed on to the researchers for alterations before being submitted to ethics.
Title: Discussion group on Assistive Technology
Date of Focus Group: 14th February 2019
Condition Addressing: Assistive Technology
Number of People in attendance: 7 people with visual impairment, 2 sighted supporters. There were also 2 healthcare professionals and 2 PPI facilitators.
Main aim of the project: To discuss the feasibility of a possible patient day on assistive technology targeted at people who have a lower level of awareness about what might be available to them..
Purpose and Outcome of Focus Group: A discussion group was held to discuss the feasibility of running an assistive technology day. Five of contributors had previously delivered assistive technology training. The aim of the discussion was to: increase our knowledge of the depth and breadth of different technologies already available/most commonly used, learn where people get their information on accessibility technology from and how to reach the target audience, understand what an event on assistive technology should be able to deliver for the target audience.
Feedback and recommendations were collated and passed to the healthcare professionals to look for funding opportunities.