PPI Learning: training and resources
PPI Knowledge Building
Our Moorfields BRC currently provides an introductory module on patient and public involvement (PPI) for all core staff at the Moorfields Clinical Research Facility. To sign up to the next available course, Moorfields staff can log into Insight via the Moorfields intranet.
Our PPI Team is available to support researchers in learning more about PPI and in developing knowledge and skills in areas such as conversation facilitation and evaluation and surveys. You can contact us at moorfieldsbrc@nihr.ac.uk to find out more.
Other knowledge building courses:
- NIHR UCLH Biomedical Research Centre's PPI training programme - Open to researchers from organisations in the UCLPartners Academic Health Science Partnership, which includes UCL and Moorfields
- NIHR Research Design Service London PPI workshops - Open to researchers, workshops are co-designed and co-delivered by patient trainers
- UCL School of Life and Medical Sciences Community of Engagers - A community of practice for those working in PPI and public engagement across the school, with termly face-to-face meetings and a virtual Yammer group
- NIHR Guy's & St Thomas' Biomedical Research Centre PPI training - Open to patients and members of the public, workshops are co-designed and co-delivered by patient trainers
- INVOLVE'S Learning for Involvement website - Search for new learning resources, training sessions and find information about training providers
- Public Reviewing with the NIHR - New co-produced online course for public reviewers of health and social care research. Researchers may also find this resource useful when writing research funding applications. It can be used as a tool to understand how to get your Patient and Public Involvement right first time!
Resources
The following resources will help you in planning for PPI at the earliest stages of your research design and development.
It is important to identify and work with an appropriate cross section of patients and public partners to identify the 'right' research question and to establish an acceptable research design with clear, relevant outcomes. PPI is most effective when clear expectations are laid out from the outset, when roles and responsibilities are clarified and relevant training and skills development is provided. Budgeting for PPI at the beginning and building in appropriate reimbursement/recognition for people's expenses, time to take part, skills and experience will help support broader involvement and more equal partnerships.
Example journals publishing PPI-related work:
PPI impact evaluation and reporting
- Public Involvement Impact Assessment Framework (PiiAF)
- Public and Patient Engagement Evaluation Tool (PPEET)
- Patient Focused Medicines Development: Patient Engagement Quality Guidance
- Staniszewska S et al. GRIPP2 reporting checklists: tools to improve reporting of patient and public involvement in research. BMJ. 2017;358:j3453
Why do/should people get involved in research?
What does patient and public involvement in research look like?
- National Standards for Public Involvement
- INVOLVE - Briefing Notes for Researchers
- Responsible Research and Innovation - Involving society in science and innovation to align outcomes with social values
- Parkinson's UK - Patient and Public Involvement: a resource for researchers
- Dean, S et al. "The Patient is Speaking": discovering the patient voice in ophthalmology. Br J Ophthalmol. 2017;101(6):700-8
- Shared Learning Group on Involvement in Research - Involving people in laboratory-based research
Starting from a patient-centric question in ophthalmology research
Putting patients at the centre of your study design
Making research accessible for patients and the public
- European Patients' Academy (EUPATI) - Toolbox on medicines development for patient advocates
- INVOLVE - Writing in plain English for non-scientific audiences
- Patient Information Forum - Writing clearly and accessibly for patients
- Ability.net - Producing visually accessible materials for print and online
- UK Association for Accessibility Formats - Creating clear print and large print documents
- Kaczmirek, L et al. Survey design for visually impaired and blind people. Universal Access in Human Computer Interaction. Part I, Coping with Diversity. Berlin: Springer, 2007 pp. 374-381
Feeding back on your research findings
- NHS Health Research Authority - Sharing research findings with study participants
- NIHR CLAHRC East of England - Feedback from researchers to PPI contributors
- Mathie, E et al. Reciprocal relationships and the importance of feedback in patient and public involvement: A mixed methods study Health Expect. 2018;21:899–908
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