PPI Learning: training and resources
PPI Knowledge Building
Our Moorfields BRC currently provides an introductory module on patient and public involvement (PPI) for all core staff at the Moorfields Clinical Research Facility. To sign up to the next available course, Moorfields staff can log into Insight via the Moorfields intranet.
Our PPI Team is available to support researchers in learning more about PPI and in developing knowledge and skills in areas such as conversation facilitation and evaluation and surveys. You can contact us at firstname.lastname@example.org to find out more.
Other knowledge building courses:
NIHR UCLH Biomedical Research Centre's PPI training programme - Open to researchers from organisations in the UCLPartners Academic Health Science Partnership, which includes UCL and Moorfields
NIHR Research Design Service London PPI workshops - Open to researchers, workshops are co-designed and co-delivered by patient trainers
UCL School of Life and Medical Sciences Community of Engagers - A community of practice for those working in PPI and public engagement across the school, with termly face-to-face meetings and a virtual Yammer group
NIHR Guy's & St Thomas' Biomedical Research Centre PPI training - Open to patients and members of the public, workshops are co-designed and co-delivered by patient trainers
INVOLVE'S Learning for Involvement website - Search for new learning resources, training sessions and find information about training providers
Public Reviewing with the NIHR - New co-produced online course for public reviewers of health and social care research. Researchers may also find this resource useful when writing research funding applications. It can be used as a tool to understand how to get your Patient and Public Involvement right first time!
The following resources will help you in planning for PPI at the earliest stages of your research design and development.
It is important to identify and work with an appropriate cross section of patients and public partners to identify the 'right' research question and to establish an acceptable research design with clear, relevant outcomes. PPI is most effective when clear expectations are laid out from the outset, when roles and responsibilities are clarified and relevant training and skills development is provided. Budgeting for PPI at the beginning and building in appropriate reimbursement/recognition for people's expenses, time to take part, skills and experience will help support broader involvement and more equal partnerships.
PPI impact evaluation and reporting
Staniszewska S et al. GRIPP2 reporting checklists: tools to improve reporting of patient and public involvement in research. BMJ. 2017;358:j3453
What does patient and public involvement in research look like?
Dean, S et al. "The Patient is Speaking": discovering the patient voice in ophthalmology. Br J Ophthalmol. 2017;101(6):700-8
Starting from a patient-centric question in ophthalmology research
Putting patients at the centre of your study design
Making research accessible for patients and the public
Kaczmirek, L et al. Survey design for visually impaired and blind people. Universal Access in Human Computer Interaction. Part I, Coping with Diversity. Berlin: Springer, 2007 pp. 374-381
Feeding back on your research findings
Mathie, E et al. Reciprocal relationships and the importance of feedback in patient and public involvement: A mixed methods study Health Expect. 2018;21:899–908
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