PPI Learning: training and resources

This is an image of someone highlighting a document. Only half the document is shown. The text is black on a white background the words you can see say 'Learning is the.. through study, experie... knowledge acquired gaining knowledge. Learning is the is highlighted in green.

PPI Knowledge Building

Our Moorfields BRC currently provides an introductory module on patient and public involvement (PPI) for all core staff at the Moorfields Clinical Research Facility. To sign up to the next available course, Moorfields staff can log into Insight via the Moorfields intranet.

Our PPI Team is available to support researchers in learning more about PPI and in developing knowledge and skills in areas such as conversation facilitation and evaluation and surveys. You can contact us at moorfieldsbrc@nihr.ac.uk to find out more.

Other knowledge building courses:

NIHR UCLH Biomedical Research Centre's PPI training programme - Open to researchers from organisations in the UCLPartners Academic Health Science Partnership, which includes UCL and Moorfields

UCL Introduction to Patient - Public Involvement - Open to staff at UCL and Moorfeilds
NIHR Research Design Service London PPI workshops - Open to researchers, workshops are co-designed and co-delivered by patient trainers
UCL School of Life and Medical Sciences Community of Engagers - A community of practice for those working in PPI and public engagement across the school, with termly face-to-face meetings and a virtual Yammer group
NIHR - Learning for Involvement website - Search for new learning resources, training sessions and find information about training providers
Public Reviewing with the NIHR - New co-produced online course for public reviewers of health and social care research. Researchers may also find this resource useful when writing research funding applications. It can be used as a tool to understand how to get your Patient and Public Involvement right first time!

Resources

The following resources will help you in planning for PPI at the earliest stages of your research design and development.

It is important to identify and work with an appropriate cross section of patients and public partners to identify the 'right' research question and to establish an acceptable research design with clear, relevant outcomes. PPI is most effective when clear expectations are laid out from the outset, when roles and responsibilities are clarified and relevant training and skills development is provided. Budgeting for PPI at the beginning and building in appropriate reimbursement/recognition for people's expenses, time to take part, skills and experience will help support broader involvement and more equal partnerships.

This is an image of a scientist in the lab. They are wearing a white coat, they have a plastic hair cover on. They are looking down the microscope.

Resource hubs:

Example journals publishing PPI-related work:

PPI impact evaluation and reporting

Why do/should people get involved in research?

What does patient and public involvement in research look like?

Starting from a patient-centric question in ophthalmology research

The James Lind Alliance Priority Setting Partnership for Sight Loss and Vision
Cochrane Eyes and Vision Group
NICE Guidelines - Eye Conditions (see recommendations for research)
NICE Evidence Search

Putting patients at the centre of your study design

Making research accessible for patients and the public

European Patients' Academy (EUPATI) - Toolbox on medicines development for patient advocates
NIHR - Writing in plain English for non-scientific audiences
Plain English Campaign
Patient Information Forum - How to guides to present clear and accessible information for patients
UK Association for Accessible Formats - Creating clear reading material
Kaczmirek, L et al. Survey design for visually impaired and blind people. Universal Access in Human Computer Interaction. Part I, Coping with Diversity. Berlin: Springer, 2007 pp. 374-381

Feeding back on your research findings

NHS Health Research Authority - Sharing research findings with study participants
NIHR CLAHRC East of England - Feedback from researchers to PPI contributors
Mathie, E et al. Reciprocal relationships and the importance of feedback in patient and public involvement: A mixed methods study Health Expect. 2018;21:899–908