Strategy
Patient and Public Involvement, Engagement and Participation Strategy 2022-2027
Purpose of the Strategy
Our Patient and Public Involvement and Engagement is central to our core ethos to maximise patient benefit.
Through shared learning, and working together, patients and the public play an essential role in the development and implementation of our research. Having an active role in our governance, strategy, research, and communications ensures our vision research provides maximum benefit to patients both locally and nationally.
We benefit from the wider insights and challenges that comes from the diversity of our patient and public advisors. Using the UK Standards for Public Involvement as our guide, we strive to innovate, learn from, and share with an ever more diverse group of people tailoring PPIEP to meet the demands of sight loss research.
PPIEP Strategic Aims
1. Setting research priorities for the future of vision research.
2. Improving equality, diversity, and representation in PPIEP
3. Building capacity, training, and resources in PPIEP
4. Monitoring and measuring the impact of PPIEP
Programmes of work
The 15 PPIEP objectives and activities within our strategy reflect the six themes in the UK Standards for Public Involvement. The Standards are a comprehensive framework of what good public involvement looks like and are designed to support self-reflection and learning.
Inclusive Opportunities
Aim: To be clear who our potential stakeholders are and where can we find and reach them.
We will involve and engage with our patients through our hospital sites, some of which are based in the most socially deprived areas in the UK. We will use local community outreach opportunities to identify, connect and bring research to a wider selection of members of the public and include currently under-represented groups in research.
Objectives
1. Collaborate in reviewing and updating the national James Lind Alliance-led Priority Setting Partnership for Sight Loss and Vision. Engaging a diverse community of stakeholders to input into the review
Success Criteria (Key Performance Indicators) -Up to date patient priorities for sight loss and vision from a diverse group of patients.
Time scale – Long term (5 + years)
Benefits BRC/CRF – BRC
Delivered by – BRC PPIE Lead
2. Use community hubs to recruit from diverse patient groups and underserved communities to input into studies that might impact them directly.
Success Criteria (Key Performance Indicators) -Increase in the diversity of PPIE contributors.
Time scale – Long term (5 + years)
Benefits BRC/CRF – CRF
Delivered by – CRF Manager
3. Targeted recruitment in PPIEP to increase diversity using our ROAM (Research Opportunities at Moorfields) online portal.
Success Criteria (Key Performance Indicators) -Increase in the diversity of study participants and PPIEP contributors.
Time scale – Medium term (3-4 years)
Benefits BRC/CRF – BRC & CRF
Delivered by – BRC PPIE Lead CRF Manager ROAM Team
Working Together
Aim: To effectively partner with public contributors in all areas of our research.
We will work collaboratively with our internal and external partners to ensure effective PPIE is embedded in CRF research and our BRC themes.
Objectives
4. Develop and publish a PPIEP strategy to embed, measure, evaluate and improve the impact of PPIEP across MEH and IoO
Success Criteria (Key Performance Indicators) – The PPIEP strategy will be published on our website and disseminated to stakeholders. We will organise promotional workshops, co-delivered by members of the public, for researchers to be made aware of and embed PPIEP principles from our strategy.
Time scale – Short term (6-12 months)
Benefits BRC/CRF – BRC & CFR
Delivered by – BRC PPIE Lead, CRF Manager
5. To ensure PPIEP is embedded across all our themes. Offering advice on grant applications, research design, conduct and dissemination.
Success Criteria (Key Performance Indicators) – Increase in the number of research studies with PPIEP embedded in them. Increase in PPIEP activities within each research study.
Time scale – Medium term (3-4 years)
Benefits BRC/CRF – BRC
Delivered by – BRC PPIE Lead
Support and Learning
Aim: Offer support and training that meets the needs of our patient and public contributors and staff.
We will support the development of skills and provide training to enable staff, researchers and public contributors to deliver effective PPIE in our research.
Objectives
6. Become a recognised centre for delivering high quality PPIEP for early translational ophthalmic research, by training researchers, engaging diverse groups, enabling sustainable PPIEP activities and improved dissemination practices
Success Criteria (Key Performance Indicators) – Training opportunities and resources developed and publicised. Increased uptake and use of training opportunities and resources. Increased outreach and engagement around training opportunities and resources.
Time scale – Long term (5+ years)
Benefits BRC/CRF – BRC
Delivered by – BRC PPIE Lead
7. Develop our PPIEP training and resources to offer improved training
Success Criteria (Key Performance Indicators) – Increased uptake and use of training opportunities and resources by researchers staff and contributors.
Time scale – Medium term (3-4 years)
Benefits BRC/CRF – BRC & CRF
Delivered by – BRC PPIE Lead, CRF Manager
Governance
Aim: To have comprehensive processes in place to show accountability within our system.
We will continue to actively involve patients and members of the public in the governance and decision making of our BRC and CRF. We will ensure our patient and public contributors are empowered to participate in our strategic development.
Objectives
8. Consolidate PPIEP strategic approaches to increase public involvement in Moorfields governance structures and the visibility of the NIHR brand.
Success Criteria (Key Performance Indicators) – Improved recruitment for our lay membership enabling it to be more representative of our patient population. To be measured against MEH patient population.
Time scale – Long term (5+ years)
Benefits BRC/CRF – BRC & CRF
Delivered by – BRC PPIE Lead, CRF Manager
9. Increase opportunities and methods for lay members to input into governance committees, management groups and theme management
Success Criteria (Key Performance Indicators) – Increased number of lay members inputting into: Governance committeeManagement groups including themesStudy steering groups.
Time scale – Long term (5+ years)
Benefits BRC/CRF – BRC
Delivered by – BRC PPIE Lead
10. Review progress and delivery over the 5-year period to identify and manage any risk to intended outcome.
Success Criteria (Key Performance Indicators) – Regular check point meetings to discuss outcomes and potential risks. Risks been identified and managed accordingly to limit impact on expected outcomes.
Time scale – Long term (5+ years)
Benefits BRC/CRF – BRC & CRF
Delivered by – BRC PPIE Lead, CRF Manager
Communications
Aim: To have the right communication mechanisms to reach the right people at the right time.
We will communicate our research in an inclusive, transparent and flexible format that is accessible for a visually impaired audience.
Objectives
11. Increase the visibility of NIHR brand Moorfields CRF research opportunities through promotional and dissemination events such as patient days and science festivals.
Success Criteria (Key Performance Indicators) – Number of events and Communication activities. Social Media metrics around these events. To do this it will require consolidation of public engagement activities through the Moorfields Trust Public Engagement Teams to ensure a coordinated approach.
Time scale – Medium term (-3-4 years)
Benefits BRC/CRF – CRF
Delivered by – CRF Manager
12. To deliver a highly active programme of patient and public engagement and involvement to identify priorities for research, design appropriate studies and share our findings effectively for greatest benefit.
Success Criteria (Key Performance Indicators) – Widen our links and collaborations with eye charities, community, and patient groups particularly in underrepresented groups. Increase internal and external engagement events to wider more diverse audiences
Time scale – Long term (5+ years)
Benefits BRC/CRF – BRC & CRF
Delivered by – BRC PPIE Lead CRF Manager
Impact
Aim: To show how we will capture and measure the difference made.
We will review and assess the impact of PPIE in our research, share our findings and apply our learnings for continuous improvement.
Objectives
13. Increase the visibility of NIHR brand Moorfields CRF research opportunities through promotional and dissemination events such as patient days and science festivals.
Success Criteria (Key Performance Indicators) – Measuring baseline PPIEP activities and reporting: Percentage increase of workforce undertaking skills training on PPIEP; Staff feedback to assess competency in promoting, measuring and advocating for PPIEP in research; Metrics on projects and diversity within projects.
Time scale – Medium term (-3-4 years)
Benefits BRC/CRF – CRF
Delivered by – CRF Manager
14. Build an impact assessment tool to monitor the effectiveness of PPIEP activities and undertake research to improve methodologies (quantitative and qualitative) that measures PPIEP impact/outputs.
Success Criteria (Key Performance Indicators) – We will measure the percentage of our projects/numbers of researchers who use the assessment tools/resources in their PPIEP activities.
Time scale – Medium term (-3-4 years)
Benefits BRC/CRF – BRC & CRF
Delivered by – BRC PPIE Lead, CRF Manager
15. Gain annual feedback from PPIEP contributors and researchers on BRC PPIEP activities.
Success Criteria (Key Performance Indicators) – Review and implement change based on the annual feedback received.
Time scale – Long term (5+ years)
Benefits BRC/CRF – BRC
Delivered by – BRC PPIE Lead
Monitoring, reviewing, and reporting
We map our PPIEP activities against the National Standards, gather feedback from participants and researchers (including annual PPIEP survey), and collect metrics to monitor our performance. To ensure our activities provide value for money and have a positive impact, we will develop, trial and evaluate an impact assessment tool to measure the effectiveness of PPIEP activities and undertake research to improve both quantitative and qualitative methodologies.