Researcher guidance
Including patient and public involvement and engagement (PPIE) in your research brings meaningful and measurable benefits to research. Involving members of the public when making decisions can offer solutions to challenges throughout the research cycle, help make research more ethical and result in better quality research.
Funders and ethics committee’s are increasingly recognising the importance of PPIE in research design and implementation, and for many this is now a fixed requirement.
PPI knowledge building
Our PPIE Team is available to support researchers in learning more about PPIE and in developing knowledge and skills in areas such as conversation facilitation, and evaluation and surveys. You can contact us at moorfieldsbrc@nihr.ac.uk to find out more.
Our BRC provides an introductory module on PPIE for all researchers. Core staff at Moorfields can easily access this via the UCLExtend training platform and all staff at the Institute of Ophthalmology and members of the public can access it through UCLExtend. This is a free public facing, on-demand course; you just need to register. We align all our PPIE to the UK Standards for Public Involvement.
Speak to our team
In addition to the training and resources available on this page, we are here to help you with guidance and advice on your PPIE.
“Please contact Helen Baker, Patient and Public Involvement and Engagement Lead at the NIHR BRC: Moorfields. h.baker@ucl.ac.uk”
Are you acknowledging NIHR BRC: Moorfields in your research papers?
This is a requirement for all researchers at UCL IoO and Moorfields as the BRC funding covers infrastructure at the very least. Wording or branding content for you acknowledgement is easily available in this section.
We are here to help you communicate your findings
Your work is important and has an impact on the scientific community, patients and the public. Our job is to help you communicate your findings in the best way. There are myriad ways to do this, contacting us in good time helps us to help you find the right channels for your research. This could be anything from press releases and making your findings lay to public or industry involvement. We can help you to make a better impact in the right type of media when you publish your findings.
“Please contact Helen Khan, Communications Manager at the NIHR BRC: Moorfields. h.khan@ucl.ac.uk”
Below are links to training and resources that can help you build your PPIE knowledge and skill set.
Our PPIE Team is available to support researchers in learning more about PPIE and in developing knowledge and skills in areas such as conversation facilitation and evaluation and surveys. You can contact us at moorfieldsbrc@nihr.ac.uk to find out more.
Our BRC provides an introductory module on PPIE for all researchers. Core staff at Moorfields can access this via the Insight training platform and all staff at the Institute of Ophthalmology and members of the public can access it through UCLExtend. This is a free public facing, on-demand course; you just need to register. We align all our PPIE to the UK Standards for Public Involvement.
Build your PPI knowledge by taking one of our or our partner’s courses:
- NIHR Moorfields Biomedical Research Centre Introduction to Patient – Public Involvement – Open to staff at UCL, Moorfields and researchers anywhere: This is a free, on-demand course; you just need to register
- Introduction to Equality, Diversity and Inclusion in Ophthalmic Research – Open to staff at UCL, Moorfields and researchers anywhere: This is a free, on-demand course; you just need to register
- NIHR UCLH Biomedical Research Centre’s PPI training programme – Open to researchers from organisations in the UCLPartners Academic Health Science Partnership, which includes UCL and Moorfields
- UCL School of Life and Medical Sciences Community of Engagers – A community of practice for those working in PPI and public engagement across the school, with termly face-to-face meetings
- NIHR – Learning for Involvement website – Search for new learning resources, training sessions and find information about training providers
- Public Reviewing with the NIHR – Co-produced online course for public reviewers of health and social care research. Researchers may find this resource useful when writing research funding applications. It can be used as a tool to understand how to get your Patient and Public Involvement right first time
- NIHR Learning for involvement – Resource Centre
- UCL Partners – Patient Insight and Involvement
- NIHR Imperial Biomedical Research Centre – PPI Resource Hub
- NIHR Learning for Involvement – Briefing Notes for Researchers
- Centre for Excellence on Partnership with Patients and the Public
- Patient Experience Library
- NIHR Research Design Service London PPI
- Patient Focused Medicines Development: Patient Engagement Guidance
- NIHR Ophthalmic Statistics Group
- National Standards for Public Involvement
- Responsible Research and Innovation – Involving society in science and innovation to align outcomes with social values
- Parkinson’s UK – Patient and Public Involvement: a resource for researchers
- Dean, S et al. “The Patient is Speaking”: discovering the patient voice in ophthalmology. Br J Ophthalmol. 2017;101(6):700-8
- Shared Learning Group on Involvement in Research – Involving people in laboratory-based research
- European Patients’ Academy (EUPATI) – Toolbox on medicines development for patient advocates
- NIHR – Writing in plain English for non-scientific audiences
- Plain English Campaign
- Patient Information Forum – How to guides to present clear and accessible information for patients
- UK Association for Accessible Formats – Creating clear reading material
- Kaczmirek, L et al. Survey design for visually impaired and blind people. Universal Access in Human Computer Interaction. Part I, Coping with Diversity. Berlin: Springer, 2007 pp. 374-381
- NHS Health Research Authority – Sharing research findings with study participants
- NIHR CLAHRC East of England – Feedback from researchers to PPI contributors
- Mathie, E et al. Reciprocal relationships and the importance of feedback in patient and public involvement: A mixed methods study Health Expect. 2018;21:899–908
- Ophthalmic Statistics Group
Our PPIE strategy 2022-27
Find our PPIE strategy here to see what our plans and aims are for the next five year BRC funding period.
Our EDI strategy 2022-27
Find our EDI strategy here to see what our plans and aims are for the next five year BRC funding period.